Chapter
2
Hearing Loss and the Family
David Luterman,
D. Ed.
Family
therapists tell us that the family is
a system in which all of the parts are
interconnected (Minuchin, 1974). This
means that if one part of the system is
not functioning well, it affects all of
the other parts; even seemingly, remote
ones. When a child is diagnosed with a
hearing loss, then we have an entire family
system with a hearing problem. This is
a difficult concept to grasp; many professionals
fail to do so, because of a lack of training
in family dynamics. It is the inclination
of everyone involved to try to “fix”
the defective part, ( i.e. the hearing
of the child). In actuality, everyone
within the family is suffering the pain
of the diagnosis of the hearing loss and
attention needs to be paid to the entire
system. In order for the child to be successful,
he or she needs to be within a family
that is nurturing and functioning as optimally
as possible.
There
are characteristics of the optimum family
discussed within the therapy literature
that are useful in understanding what
makes a family system function well. These
are idealized family characteristics.
No family will be able to incorporate
all of these to perfection. Satir’s
book (1971), People Making, describes
many of the characteristics of the ideal
family and Napier and Whitaker’s
book (1978), The Family Crucible, details
the way therapists work with the family
unit. While both books are old, they are
classics and may be read with profit by
the interested reader. The website for
the American Association of Marriage and
Family Therapists (www.aamft.org) provides
contemporary information on therapeutic
approaches to families in stress.
Clear Communication
Almost
any therapist who writes about family
systems is concerned with the patterns
of communication within the family. Dysfunctional
families have implied communication in
which much is “understood”
but not said. These are silent “rules”
that a family follows that are usually
understood by every one in the system.
For example, a family may decide not to
talk about how they feel regarding their
child’s hearing loss. If there’s
an implicit directive that emotions are
unacceptable, family members often feel
isolated in their pain. A child’s
hearing loss causes high emotions to flourish
within the family, not only for the parents,
but for siblings and grandparents as well.
If the family has no mechanism for talking
about their feelings, the family system
is stressed. This can take many forms.
For example, the unexpressed and unacknowledged
anger is often displaced on another family
member. The angry person does not recognize
the source of the anger as the repressed
feelings about the hearing loss. Conflicts
in dysfunctional families are seldom about
what they’re really angry over because
parents lack the skills for direct non-threatening
confrontation.
Another
common emotion in less than optimal families
is guilt. If not acknowledged, it leads
to super dedication and overprotection
of the child. This leaves little time
for siblings or energy to maintain the
marriage. A healthy family system would
allow for clear direct communication where
both feeling and content are expressed.
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