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The Consumer Handbook on Tinnitus
CHAPTER THIRTEEN
Hyperacusis

David M. Baguley BSc, MSc, MBA, PhD

One problem with understanding hyperacusis is that many different words are used, and this can be confusing for both patients and professionals. We'll use the word hyperacusis to mean the experience of moderately intense sounds, being perceived as very loud and annoying. Sometimes the word phonophobia is used when people develop a fear of sound. Although numerous other terms have been used, I believe that overall, "hyperacusis" is the best word to describe these symptoms.

In mild hyperacusis, moderately intense sounds (such as dishes banging together and the knife and fork clanging on the plate) are heard as loud. This can lead to stress, but most aspects of life can continue. In moderate cases you perceive many everyday sounds as very loud and annoying. You might even avoid some situations where you know there will be loud sounds, such as football games or concerts. You can become defensive and fearful, and might even think that the moderately intense sounds will harm you. At this point, many social activities are avoided, and family life can become a struggle.

In severe cases there is a very significant impact upon the individual and their family. Some people with hyperacusis constantly wear earplugs. Others notice this odd behavior. Not surprisingly the possibility of depression and chronic anxiety is significant, and these symptoms can add further to the hyperacusis. Here's an excerpt from the story of a lady with severe hyperacusis, who has now recovered:

“My partner and I were concerned about my apparent overreaction to moderately-intense noise. I was very anxious, wondering what was wrong with me, and wondering if it might be a brain tumor. Eventually, I couldn’t bear to be in the kitchen (couldn’t tolerate the noise of the kettle, boiler, microwave, and refrigerator), or use the vacuum cleaner, listen to music, TV, or play the piano. At its worst, I couldn’t bear the noise of the hair dryer or even the sound of cutlery on the plates. Equally, I couldn’t bear to be outside and sounds such as birds chirping, traffic (either close to or in the distance). Airplanes flying overhead were just so loud. Once I had a panic attack while listening to a very loud lawn mower. When we finally saw the audiologist, he allayed our fears by giving it a name (hyperacusis) and telling us that it was non-life threatening. However, hyperacusis took away many aspects of life because it's so limiting. I was unable to continue in my job as well as in my voluntary work and most of my social activities. I was even unable to travel either by car, bus, train or plane. Unable to go anywhere other than for quiet walks round the village. Unable to visit family or friends. Unable to work. It was difficult to talk to anyone on the phone, and I couldn’t cook meals in the kitchen. It was like being a prisoner in my own home. Thankfully, my husband was able to arrange to work from home where he could do the cooking, as well as go with me wherever I went in case I had a panic attack.”